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Colorado Springs to host ASF Walk
KXRM Colorado Springs via Yahoo News· 1 month ago(COLORADO SPRINGS) — In celebration of 25 years, the Angelman Syndrome Foundation (ASF) will host its yearly walk the weekend of Saturday, May 18....
Ultragenyx (RARE) Provides Update From Angelman Syndrome Study
Zacks via Yahoo Finance· 2 years agoUltragenyx (RARE) and GeneTx Biotherapeutics provide an update and positive interim data from the...
Ionis (IONS), Biogen Down on Ending Development of ALS Drug
Zacks via Yahoo Finance· 1 month agoShares of Ionis Pharmaceuticals IONS and Biogen BIIB lost at least 2% in market cap on Thursday...
‘Meet Angelman syndrome’: A Rosemount toddler’s diagnosis spurs family to work for cure
Pioneer Press, St. Paul, Minn. via Yahoo News· 1 year agoHenry Edberg dug through the play kitchen at his home in Rosemount before serving up the daily special to his older brother. “Vegetables are healthy, so I’m giving you the vegetables,” Henry ...
Harper's Hope: Webb continues to navigate rare disease diagnosis after 10 years
Messenger-Inquirer, Owensboro, Ky. via Yahoo News· 1 year agoMar. 8—Ten-year-old Harper Webb, a fourth-grader at Highland Elementary School, was diagnosed with Angelman Syndrome at 11 months old, and despite the diagnosis, she is a bright and kind-hearted ...
I dreamed of the travel we'd do as a family of 4. Then came my youngest daughter's life-altering...
Business Insider via Yahoo News· 5 months agoAuthor and her eldest daughter on vacation at a hotel in Sydney.Tatyana Leonov Tatyana Leonov and...
What Causes Scoliosis?
Verywell Health via Yahoo News· 9 months agoA Closer Look at the Underlying Pathology in Children and AdultsMedically reviewed by Josephine Hessert, DO Scoliosis is an abnormal curvature of the...
Why Ultragenyx Pharmaceutical Stock Is Cratering Today
Motley Fool· 2 years agoWhat happened Shares of the rare disease specialist Ultragenyx Pharmaceutical (NASDAQ: RARE) are...
What Is Cataplexy?
Verywell Health via Yahoo News· 1 year agoCataplexy is a rare medical symptom. It is a sudden and involuntary loss of muscle tone. Cataplexy is typically associated with narcolepsy, a rare...
'He did amazing things every day': Mercyhurst University mourns autism advocate Brad McGarry
Gannett via AOL· 6 months agoBrad McGarry's plan was to teach psychology at Mercyhurst University, not help children and college...
