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My 8-year-old lost his vision — that’s how I learned he has a rare dementia-like disease
NY Post via Yahoo News· 3 months agoEmily Blackburn, 33, a mom of two from Tipp City, Ohio, has virally shared her family's deep secret...
Girl, 7, diagnosed with rare and fatal illness after a routine eye exam
The Independent via Yahoo News· 9 months agoA Texas elementary school student received a devastating health diagnosis after her school teachers...
'Star Wars' star Mark Hamill visited a dying boy, in character as Luke
TODAY via Yahoo News· 1 year agoOne family will never forget what actor Mark Hamill did for their dying son. WHY I WILL LOVE...
Austin musician Casey McPherson opens Everlum Bio lab to treat, find cure for daughter Rose
Austin American-Statesman via Yahoo News· 10 months agoRose McPherson has an infectious laugh. She heads to the front door of her Northwest Austin house...
Parents are becoming drug developers to find a cure for their children’s rare diseases
Fortune via Yahoo Finance· 2 years agoFamilies affected by ultra-rare diseases are starting their own companies to speed the development...
Here's Why Investors May Bet on BioMarin (BMRN) Stock Now
Zacks via Yahoo Finance· 5 months agoBioMarin Pharmaceutical Inc. BMRN develops treatments for serious life-threatening medical...
'Born brave:' Tipp City first-grader battling rare genetic disease
Springfield News-Sun, Ohio via Yahoo News· 1 year agoJun. 2—Grayson Naff is 7 1/2 years old. He's in first grade. He lives in Tipp City. He loves his 22-month-old brother Beckett, video games, YouTube and his friends at Nevin Coppock Elementary ...
This lifesaving treatment was designed for one. Could it be the future of medical care?
USA TODAY via Yahoo News· 7 months agoImagine you or your child gets a diagnosis so rare no one else on Earth is known to have it. Doctors can do nothing but predict a terrible downward spiral followed by death. That's the situation ...
Mila’s legacy: The little girl who could change how medicines are made in Britain
The Telegraph via Yahoo News· 3 months agoJulia Vitarello and her family lived an outdoor life against the backdrop of the Rocky Mountains in...
Biotech Stock Finds Favor Among Mutual Fund Managers
Investor's Business Daily· 1 year agoBioMarin Pharmaceutical executed a hyper-bullish breakaway gap in late November as it broke out of a double-bottom base with a buy point of 92.86. The...