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1. • 

     6-Year-Old Enjoys Fundraiser for Her Rare Disease: I Wore 'a Unicorn Onesie and Butterfly Wings!'

     People via Yahoo News· 1 year ago

     The "Plunge for Elodie" raises awareness and funds for critical research to treat and cure...

2. • 

     Gene-therapy drops restore teen's vision after genetic disease left his eyes clouded with scars

     Live Science via Yahoo News· 11 months ago

     close up of a child's brown eye; you can see the interior of an eye doctor's office lightly...

3. • 

     New gene therapy gel is the 1st approved treatment for rare and painful 'butterfly disease'

     Live Science via Yahoo News· 1 year ago

     photo shows the gloved hands of a nurse wrapping a child's foot in gauze and bandages; the child's...

4. • Telethon features Gilbert girl with rare skin disease

     East Valley Tribune (Mesa, Ariz.) via Yahoo News· 1 year ago

     Apr. 13—For the past decade, Brystal Murray has lived with a rare genetic condition called epidermolysis bullosa or EB, which causes her skin to easily blister and tear from minimal friction ...

5. • 

     Baby’s ‘butterfly skin’ leaves parents terrified to cuddle him

     The Independent via Yahoo News· 2 years ago

     The first time Dominic Evans, 37, held his newborn son he felt sure “something was seriously wrong”...

6. • 

     Dublin electrician transforms home into Halloween House of Horrors for charity

     Press Association News via AOL· 8 months ago

     A Dublin electrician has said adults and children from the community are vital to transforming his...

7. • Iran's Revolutionary Guards Capture Oil Tanker Amid Sanctions Dispute

     Oilprice.com via Yahoo Finance· 3 months ago

     A Tehran court ruled to confiscate a $50 million oil cargo from a Marshall Islands-flagged tanker seized by Iran, with proceeds aimed to compensate patients with a rare skin disease affected by US sanctions.

8. • 

     Gene therapy eyedrops restored a boy's sight. Similar treatments could help millions

     Associated Press via Yahoo News· 11 months ago

     Dr. Alfonso Sabater pulled up two photos of Antonio Vento Carvajal’s eyes. The other, taken after...