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Model, 24, with Rare Skin Disease Bares Scars to Raise Awareness: 'I Choose to Show the Body I Was...
People via Yahoo News· 1 year agoguen fiore Lucy Beall Lucy Beall was born with epidermolysis bullosa, a rare genetic disorder that...
Darin Mock putting spotlight on Epidermolysis Bullosa
Racer via Yahoo News· 1 year agoOn the track, a racecar driver's hands and feet are continually in motion, especially on the...
TikToker, 16, with Agonizing Skin Disorder That Causes Blisters and Tearing Shares 'Get Ready With...
People via Yahoo News· 8 months agoLily, 16, has Epidermolysis Bullosa, a rare and painful childhood skin disorder that makes her "look...
What's Up Doc? Rare skin disorder causes blistering, calls for genetic counseling
The Metrowest Daily News via Yahoo News· 2 years agoQ: What is epidermolysis bullosa? A: Epidermolysis bullosa is a group of rare skin disorders that...
Kaley Cuoco Gets Emotional Sharing How Charity Work Has New Meaning as a Mom (Exclusive)
ET Online via AOL· 1 year agoKaley Cuoco is having a renewed outlook on her charity work after welcoming her daughter, Matilda,...
Krystal Biotech Epidermolysis Bullosa Study Data Published In New England Journal Of Medicine
Benzinga via Yahoo Finance· 1 year agoKrystal Biotech Inc (NASDAQ: KRYS) announced that data from the pivotal Phase 3 (GEM-3) trial of...
Krystal Biotech (KRYS) Gains 36% Year to Date: Here's Why
Zacks via Yahoo Finance· 16 hours agoShares of the commercial-stage biotechnology company, Krystal Biotech, Inc. KRYS, surged 36.5% year...
6-Year-Old Enjoys Fundraiser for Her Rare Disease: I Wore 'a Unicorn Onesie and Butterfly Wings!'
People via Yahoo News· 1 year agoThe "Plunge for Elodie" raises awareness and funds for critical research to treat and cure...
FDA Approves First Redosable Gene Therapy, Krystal Biotech's Treatment For Skin Blistering Disorder
Benzinga via Yahoo Finance· 1 year agoThe FDA approved Krystal Biotech Inc's (NASDAQ: KRYS) Vyjuvek (beremagene geperpavec-svdt) for the...
Jim Carter shares touching message to young Downton Abbey fan dealing with rare skin condition
The Independent via Yahoo News· 12 months agoDownton Abbey star Jim Carter has shared a heartfelt message to a young fan of the hit period drama...
