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Her husband died of ALS. Now, her story is featured in an Amazon Prime documentary.
Gannett via AOL· 5 days ago“It’s so uplifting. It’s so inspiring,” Couric said on a "Today" show segment about the documentary....
Rare disease's mutation could explain more common conditions
Medical Xpress· 7 days agoTREX1 is a gene that is supposed to direct the maintenance of the entire body's DNA, but new...
ALS walk at Eastwood Mall Complex raises money for research of incurable disease
WKBN 27 Youngstown· 2 days agoValley resident Leslie Sok was diagnosed with ALS two years ago.
...Sciences Announces that Fosigotifator (ABBV-CLS-7262) for Vanishing White Matter Disease has been...
Lodi News-Sentinel· 4 days agoFDA's Center for Biologics Evaluation and Research (CBER) and Center for Drug Evaluation and Research (CDER) initiated the START Pilot Program to help further accelerate the development of novel ...
Denali's (DNLI) Candidate Selected for FDA's START Pilot Program
Zacks via Yahoo Finance· 7 days agoDenali's (DNLI) DNL126, an investigational enzyme replacement therapy, gets selected for the START...
Small Business - Salisbury Post | Salisbury Post
The Salisbury Post· 6 days agoLeveraging Abu Dhabi's advanced healthcare infrastructure and AstraZeneca's global expertise and experience in rare diseases management...
Santhera Announces Launch of Early Access Program in China for AGAMREE® by its Partner Sperogenix
Benzinga· 1 day agoPratteln, Switzerland, June 10, 2024 – Santhera Pharmaceuticals (SIX: SANN) announces that its partner Sperogenix Therapeutics has launched a paid-for Early Access Program (EAP) for AGAMREE® (vamorolone) in China
Second annual ‘Walk to Defeat ALS’ at Irvine Park on Sunday
WEAU Eau Claire· 2 days agoWith the help of the ALS Association, Jenny was given the resources she needs to make her life with...
I Was Diagnosed With ALS at Age 20. Here’s How Dark Humor Is Helping Me Cope
Self via Yahoo News· 5 days ago(Somewhat kidding.) Seriously, I wanted to raise awareness. A lot of people think this is a disease...
POEMS Syndrome
Health via Yahoo News· 4 days agoRare Disorders (NORD), POEMS syndrome has two major co-occurring disorders: Castleman disease: This rare disorder causes enlarged lymph ...
