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Model, 24, with Rare Skin Disease Bares Scars to Raise Awareness: 'I Choose to Show the Body I Was...
People via Yahoo News· 1 year agoguen fiore Lucy Beall Lucy Beall was born with epidermolysis bullosa, a rare genetic disorder that...
Jim Carter shares touching message to young Downton Abbey fan dealing with rare skin condition
The Independent via Yahoo News· 1 year agoDownton Abbey star Jim Carter has shared a heartfelt message to a young fan of the hit period drama...
TikToker, 16, with Agonizing Skin Disorder That Causes Blisters and Tearing Shares 'Get Ready With...
People via Yahoo News· 8 months agoLily, 16, has Epidermolysis Bullosa, a rare and painful childhood skin disorder that makes her "look...
Parents of baby with ‘butterfly skin’ too afraid to cuddle him for fear of infection
Yahoo Life UK· 2 years agoParents Dominic Evans and Michelle Lobato are caring for their baby Giorgio, who was born with a...
Girl with rare skin disease stars in book explaining disorder to classmates
The Independent via Yahoo News· 2 years agoA schoolgirl who suffers from a rare skin disease has become the cover star of a new book explaining...
Darboy teen Charlie Knuth, who publicly battled a rare skin disease his whole life, dies 'peacefully...
The Post-Crescent via Yahoo News· 1 year agoDarboy's Charlie Knuth, whose fight with a rare skin disease captured the hearts of many in...
New gene therapy gel is the 1st approved treatment for rare and painful 'butterfly disease'
Live Science via Yahoo News· 1 year agophoto shows the gloved hands of a nurse wrapping a child's foot in gauze and bandages; the child's...
FDA rejects Abeona cell therapy, asks for more manufacturing data
BioPharma Dive via Yahoo Finance· 2 months agoThe Food and Drug Administration has rejected an experimental cell therapy for a rare skin...
Gene-therapy drops restore teen's vision after genetic disease left his eyes clouded with scars
Live Science via Yahoo News· 10 months agoclose up of a child's brown eye; you can see the interior of an eye doctor's office lightly...
Baby’s ‘butterfly skin’ leaves parents terrified to cuddle him
The Independent via Yahoo News· 2 years agoThe first time Dominic Evans, 37, held his newborn son he felt sure “something was seriously wrong”...