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What Is Retinitis Pigmentosa?
Verywell Health via Yahoo News· 1 year agoRetinitis pigmentosa (RP) is a genetic eye disease that causes the retina to break down. With retinitis pigmentosa, the light-sensitive retina slowly...
Canadian family goes 'all in' to travel the world before their kids lose sight
Yahoo Canada Style· 1 year agoA Quebec family set on a once-in-a-lifetime adventure before three of four children lose their...
Social Media Star Molly Burke Recalls Going Blind at 14 Due to Retinitis Pigmentosa
TODAY via Yahoo News· 2 years agoWhen Molly Burke lost her vision at 14, teens bullied her. She had been speaking publicly at events...
MeiraGTx Posts Encouraging Gene Therapy Data From Eye Disorder Trial
Benzinga via Yahoo Finance· 2 years agoMeiraGTx Holdings plc (NASDAQ: MGTX) announced topline data from the Phase 1/2 study MGT009 of...
Family Travels World Before Kids Lose Vision Retinitis Pigmentosa
The Today Show via AOL· 2 years agoFamily travels the world to create 'visual memories' before 3 kids lose vision because of retinitis...
Ocugen Highlights Interim Data From Gene Therapy Study For Genetic Vision Loss Disorder
Benzinga via Yahoo Finance· 1 year agoOcugen Inc (NASDAQ: OCGN) announced preliminary data among retinitis pigmentosa (RP) participants...
Emmerdale couple share son’s rare health diagnosis: What is Usher Syndrome?
Yahoo Life UK· 1 year agoWatch: Emmerdale couple reveal that their children are living with a rare genetic condition A...
Peter Alexander’s Sister Rebecca Recalls Progressive Vision and Hearing Loss Since Age 12 Due to...
People via Yahoo News· 2 weeks agoRebecca Alexander opens up about being diagnosed with Usher syndrome and becoming a disability...
J&J bets bigger on MeiraGTx’s eye gene therapy
BioPharma Dive via Yahoo Finance· 5 months agoAhead of a Phase 3 readout that could come next year, the pharma is paying $130 million in upfront and near-term cash for rights to the retinitis...
A new research effort takes aim at 8 rare diseases. It could revolutionize many more.
USA TODAY via Yahoo News· 1 year agoTerry Pirovolakis raised $4.5 million – $20 at a time – to help develop treatments for his son...