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Darin Mock putting spotlight on Epidermolysis Bullosa
Racer via Yahoo News· 1 year agoOn the track, a racecar driver's hands and feet are continually in motion, especially on the...
What's Up Doc? Rare skin disorder causes blistering, calls for genetic counseling
The Metrowest Daily News via Yahoo News· 2 years agoQ: What is epidermolysis bullosa? A: Epidermolysis bullosa is a group of rare skin disorders that...
Krystal Biotech Epidermolysis Bullosa Study Data Published In New England Journal Of Medicine
Benzinga via Yahoo Finance· 1 year agoKrystal Biotech Inc (NASDAQ: KRYS) announced that data from the pivotal Phase 3 (GEM-3) trial of...
Model, 24, with Rare Skin Disease Bares Scars to Raise Awareness: 'I Choose to Show the Body I Was...
People via Yahoo News· 1 year agoguen fiore Lucy Beall Lucy Beall was born with epidermolysis bullosa, a rare genetic disorder that...
TikToker, 16, with Agonizing Skin Disorder That Causes Blisters and Tearing Shares 'Get Ready With...
People via Yahoo News· 8 months agoLily, 16, has Epidermolysis Bullosa, a rare and painful childhood skin disorder that makes her "look...
Kaley Cuoco Gets Emotional Sharing How Charity Work Has New Meaning as a Mom (Exclusive)
ET Online via AOL· 1 year agoKaley Cuoco is having a renewed outlook on her charity work after welcoming her daughter, Matilda,...
6-Year-Old Enjoys Fundraiser for Her Rare Disease: I Wore 'a Unicorn Onesie and Butterfly Wings!'
People via Yahoo News· 1 year agoThe "Plunge for Elodie" raises awareness and funds for critical research to treat and cure...
FDA Approves First Redosable Gene Therapy, Krystal Biotech's Treatment For Skin Blistering Disorder
Benzinga via Yahoo Finance· 1 year agoThe FDA approved Krystal Biotech Inc's (NASDAQ: KRYS) Vyjuvek (beremagene geperpavec-svdt) for the...
U.S. FDA approves Krystal Biotech's skin-disorder gene therapy
Reuters via Yahoo News· 1 year ago(Reuters) -The U.S. Food and Drug Administration on Friday approved Krystal Biotech Inc's...
Jim Carter shares touching message to young Downton Abbey fan dealing with rare skin condition
The Independent via Yahoo News· 1 year agoDownton Abbey star Jim Carter has shared a heartfelt message to a young fan of the hit period drama...