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New treatment gives Lynnwood child new chance at life after given months to live
KIRO via Yahoo News· 1 year agoIn 2017, Farah Mirizadeh was diagnosed with Spinal Muscular Atrophy (SMA) and given maybe seven to...
I suffer from the world's most beautiful disease - and also the most expensive to treat
The Conversation en Español via Yahoo News· 11 months agoSpinal muscular atrophy, a disease the author of the article suffers, is one of the genetic diseases...
I was told my daughter would never walk because of a rare genetic disease. We just strolled down the...
INSIDER via Yahoo News· 2 years agoAmber-Joi Watkins' and her daughter, Céline, at New York Fashion Week.IMAXTree for Genentech...
Twin 'was just melting': Babies with neuromuscular disease find new hope in Austin
Austin American-Statesman via Yahoo News· 1 year agoJenny and Jarod Carter's twins weren't making their typical infant milestones after they were born...
Cure SMA Awareness candle lighting event set for Aug. 12
The Bemidji Pioneer, Minn.· 9 months agoJul. 31—BEMIDJI — Little Miss Minnesota Princess 2023 and Little Miss Global United Princess 2023 Ariana Wright will host a cure SMA awareness candle lighting event at sunset on Aug. 12 at Candlewood ...
Austin musician Casey McPherson opens Everlum Bio lab to treat, find cure for daughter Rose
Austin American-Statesman via Yahoo News· 9 months agoRose McPherson has an infectious laugh. She heads to the front door of her Northwest Austin house...
Evansville child with rare spinal disease is still 'the happiest kid ever'
The Courier & Press via Yahoo News· 2 years agoEVANSVILLE, Ind. – Daniele Johnson's youngest son, Anthony, was born with a rare spinal condition....
At 63, I'm one of the oldest women living with my rare genetic condition. I'm also a musician, and...
INSIDER via Yahoo News· 1 year agoPatricia Panzarino.Courtesy of DeFilipo Foto Patricia Panzarino, or Pidgie, was born with spinal...
Thousands of people participate in event in Westmoreland County to fight spinal muscular atrophy
WPXI via Yahoo News· 1 week agoThousands of people “walked and rolled” for a good cause in Westmoreland County on Saturday. The...
Life with SMA: Patient, advocates weigh in on rare genetic disorder
Kokomo Tribune, Ind. via Yahoo News· 2 weeks agoMay 1—At the age of 23, Chloe Caldwell is learning to drive. She had her first lesson in mid-April, but won't be able to get back in the driver's seat until the summer. She has to wait until ...
