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Florida lawmaker recognizes Rare Disease Day, urges others to 'challenge the norm'
Tallahassee Democrat via Yahoo News· 3 months agoIt is no coincidence that Rare Disease Day is observed on a day that comes only once every four...
Newberry lights up to observe Rare Disease Day
The Newberry Observer, S.C. via Yahoo News· 1 year agoFeb. 20—NEWBERRY — Community Hall will light up in blues, pinks, oranges and greens this February in observance of Rare Disease Day. Held annually on the rarest day of the calendar — February ...
For Component Brewing owner, Zebra Hop beer fundraiser for rare diseases is personal
Milwaukee Journal Sentinel via Yahoo News· 3 months agoComponent Brewing, 2018 S. 1st St. #169, launches its new beer, Zebra Hop hazy IPA, on February 29....
Rare Disease Day: Greenbrier Co. family shares battle with GAMT
WVNS Bluefield via Yahoo News· 3 months agoRONCEVERTE, WV (WVNS) — Guanidinoacetate methyltransferase deficiency, or GAMT, is an inherited...
Las Vegas parents shining light on son’s rare disease on National Rare Disease Day
KLAS articles via Yahoo News· 3 months agoThe last day in February is National Rare Disease Day which lands on a rare day today -- Feb. 29 --...
I Asked My Sister To Try To Die On Feb. 29. Her 6-Word Response Completely Broke Me.
HuffPost via Yahoo News· 3 months agoThe author (left) and her sister Kim the summer before Kim passed away. Courtesy of Kristyn Benedyk...
Rare Disease Day: Tackling “MEF2C” With Raiders Player Brandon Parker and Family
KLAS articles via Yahoo News· 3 months agoLas Vegas(KLAS)-February 29th is rare disease day. Raising awareness and creating change for the 300 million people worldwide living with a rare disease, and of course for the families that ...
Nearly 30 million Americans are impacted by a rare disease
Scripps News via AOL· 3 months agoGeneric ficticious medical report and cardiogram Rare diseases impact nearly 30 million people in...
Rare Disease Day: Bakersfield family spreads awareness of Hunter’s syndrome
KGET Bakersfield via Yahoo News· 3 months agoBAKERSFIELD, Calif. (KGET) — Project Alive is a leading advocate for victims of rare diseases. One mother knows of the importance of this representation, as her son has a rare disease of his ...
Opinion: Ohioans can make major difference in fight against rare diseases
The Columbus Dispatch via Yahoo News· 1 year agoEddie Pauline is president and CEO of the Ohio Life Sciences Association, the state trade...